This is an update on some of James’ medical stuff, but I’ll just let you know now that the ending is To Be Continued…
I mentioned last time that James had one abnormality in his thyroid test, so the pediatrician requested that we bring him back in after 6 weeks for another blood test. The results came back with his TSH still slightly elevated (this time 2 points high instead of 1), but all other thyroid tests were normal and antibody levels were normal. This means that he has mild or subclinical hypothyroidism. My online research shows that there is some disagreement among doctors about how, or if, this should be treated, but we’ve been referred to the endocrinology department at Children’s in Seattle so that the experts can take a look at him and his results. So we’ll let you know how that goes, but I’m still waiting on a call.
Now my friends on fb got to see some adorable photos of James today as he visited pediatric cardiology for an echocardiogram and EKG, so I wanted to let everyone know how that went. You may guess that the results weren’t perfect because I wouldn’t need to bother with a post for it if everything had been fine. We’ve had absolutely no indication that he has any heart issues, so I was very surprised to hear that he does, in fact, have a few heart defects. Before I go further, I want to make sure no one is panicking. The doc said that his heart seems to be working pretty well despite the defects. I was going to try and describe the defects, but I’ve learned today that Google is no replacement for a medical degree. ;) He has a couple valves that aren’t formed properly, so they let a little blood go the wrong direction. Another reason that I can’t describe this well to you is that even the cardiologist was having a hard time describing it. There are two reasons for this: 1. The echo wasn’t clear enough in some areas. 2. His heart seems to have tried to heal itself. Do we need any more proof that James is an amazing little guy? He has a little miracle heart! There was an area that she said seems to have had a hole, but one of his valves moved down somehow and blocked the hole and keeps blood from leaking into the wrong chamber. The doc was pretty impressed. So we’ve been referred to Children’s again to get an echo on a machine meant for little hearts and also maybe a tech that works with children every day. I’m sure the tech today was great, but James’ chest wall is shaped a little strangely and made her job harder. Plus, we all know that the staff at Children’s are just rockstars at their jobs since children are their specialty. So for now the doc said not to worry (easier said than done) because it looks as though the issues are things that will just require him to be monitored annually to make sure the leaks don’t get bigger. She just needs to see a better echo to make sure that hole really is blocked completely and that the leaks aren’t worse than she thinks, so we would appreciate prayers about those things because it would obviously be wonderful to avoid heart surgery. I know I didn’t really use the correct medical jargon here, but you know how none of that really sticks in your head when you get news that is a little overwhelming. I didn’t freak out or anything, but we did have comfort food for dinner that did not require use of my brain (pizza).
James is also having his evaluations this week to find out if he qualifies for pediatric therapy with the school district, but I’ll go over that another time. I think we’ve all got enough info swimming around our brains for now. :)
And I’ll go ahead and share the adorable photos from today for those that aren’t on fb. They’re just too cute!